Recap: I come home from work each day and collapse on my bed and wish the world would stop because I can’t push on any longer, everything is such an effort.
In the same week, a family friend (thanks Reneè) and someone my mum works with give me the name of the same Dr in Rosebud (30 mins away from me) who is supposed to be excellent and they encourage me to go see her.
Of course I will, it’s now late July 2014, I seen the Endocrinologist in May. I call & can’t get an appointment until September….. here we go again I think, waiting, waiting, waiting.
Given my experiences in the last 18 months, I’m not hopeful, I’ve lost trust in our medical system. I’m seeing an Integrative Holistic GP, I’ve never heard of this before. (Fast forward 6 years and these practitioners are popping up everywhere).
The day of my appointment – (more time off work)- lucky my amazing supportive boss is a Nurse and could physically SEE something was really wrong. I take the same list I took to the Endocrinologist so I can remember what’s been going on. The appointment goes for 1 whole hour and she asks me literally hundreds of questions.
She’s nodding her head and saying yes to my answers and nodding to the things on my list as I reel them off. I give her all of my blood tests, she looks at some of them and says “I can see some problems here but as these aren’t current tests, let’s wait till we have current results”.
Off I go for more blood tests- this has become increasingly hard now, I’m so fat and puffy they can’t find veins and on top of that, I have deep veins.
Once I had to leave because they couldn’t draw blood after numerous attempts & they always have trouble, which then makes me uneasy as then they get flustered, especially if there is a waiting room full of people. I
go on to have blood tests every 4 weeks for months which becomes a stressful process and I’m not even afraid of needles, imagine if I was!
I’m having the bloods done and they take 13 vials…. 13!
I felt half dead after the blood tests be honest but this also gained my attention, this Doctor was testing me for lots of things, at least she has taken me seriously. It was quite evident I wasn’t well, I looked sick. A friend described me as a balloon that looked like it needed to be popped, which is very different to just being fat.
I go back for my follow up appointment expecting the “your labs are normal” bullshit but instead the Dr says – “Well to start with you have Hashimoto’s Thyroiditis, are Anaemic, have Hypothyroidism, Low Vitamin D, Low Vitamin B12 and all of your hormones – Testosterone, Estrogen, Pregnenolone, DHEA etc are out of whack”.
……I just look at her, its’ like I’m in a daze…. I say “What do you mean? I have all those or you are going to treat me for that due to my symptoms”. I said this as in my own research I had seen where some Dr’s were treating the thyroid dependant on symptoms, not just on blood test results.
She said “No you have it”, and turns her computer screen around so I can see all the things she was talking about which are highlighted in red on the screen. I’m kind of numb, confused and don’t know what’s going on.
“But I’ve had lots of tests and even went to an Endocrinologist just a few months ago and she didn’t find anything”.
“I know she says, I have your blood tests here, she didn’t test you for any of these things”. “What? are you kidding?
The rest of the appointment was discussing the plan of recovery to get me back to health and normal weight however it’s not a quick process. How long will it take? I ask- 1 year she replies.
1 YEAR!!!! I actually raised my voice……. not another year…..yes- and it actually takes a lot longer than this- as I have something else lurking in the shadows also contributing, which comes to light later and then something else manifests which lands me in need of major surgery.
I’m happy that at least now I know what the problem is, I’m concerned as Hashimoto’s is an Autoimmune Disease, which means it never really goes away but my overwhelming response is…..I want to burn that Endocrinologist’s building down, I’m furious, I seriously want to set fire to the joint AND take legal action….. none of which I do :), which I should have done.
How can all of the Dr’s & Specialists I’ve been too in the last 18 months all miss this? Every single one of them….. I feel cheated, let down and did I mention FURIOUS!
I just know that if this had of been found in the beginning, I wouldn’t have-
Gained all this weight
Have an Autoimmune Disease
Had a miserable existence for the last 18 months
Have the recovery and cost of the recovery to bear, I’ve already spent thousands of dollars trying to work out what’s wrong and now I’m going to spend thousands more getting well.